Intentional Path To Health

Want to see how your support makes a real impact? ✨ Take a look at some of the meaningful work The Ehlers-Danlos Society accomplished in 2025.

Join us in supporting this passionate nonprofit as they continue to improve access to diagnosis, advance treatment, and educate the medical community about EDS—a genetic condition that has long been overlooked. 🦓💜

We hope to see you all at our fundraising event tomorrow night! 🎶

You can still donate for up to a week after the event, whether you're able to attend or not. Every contribution—no matter the size—helps move this mission forward. 🙏✨

⬇️*Event and donation page links in the comments*⬇️

Watch How We're Making Change Happen, Together Because of you, 2025 was a year of progress for those living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD), for those still s...

In another part of my life I’m a DJ because playing music brings me so much joy. 🎶🎧✨ Come help us celebrate a good cause if you’re in the Portland area on Wednesday, April 8th at Wonderlove. Even if you can’t attend we’ve also set up a fundraising page that can be donated to before and up to a week after the event. The Ehlers Danlos Society does so much to support our patient population! Let’s give them some love and support in return! 🦓💗👩🏿‍🦽‍➡️✨💃💸

Want to join us in supporting a good cause? The Give Back Portland is raising money for The Ehlers Danlos Society. 🦓 Your contribution will make an impact, whether you donate $5 or $500. Every little bit helps! 🤗✨

Why did we pick Ehlers-Danlos Society?
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals & supporters dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders & related conditions. They support collaborative research & education initiatives, awareness campaigns, advocacy, community-building & care for the EDS & HSD population. Their goals are world-wide awareness & a better quality of life for all who suffer from these conditions. Melody (AKA Miss Melodious) will be representing Sonic Sisterhood as part of The Give Back Portland coalition that night. She also personally understands the daily struggles of coping with this incurable genetic condition, as she has it herself. That is why it’s so important to support The Ehlers Danlos Society, as they are the driving force behind the majority of the fundraising, research, support, education and awareness for EDS & hypermobility spectrum disorders. While they are a global organization, they also support local Ehlers Danlos support groups and non-profits, like the Oregon Area Ehlers Danlos Society.

With that all said, we’d love to see you at our fundraising event on Wednesday, April 8th at Wonderlove from 8pm-12:30am if you’re able to make it! We have a great lineup of DJs who will be playing awesome tunes for you all evening! 🎶🎧💃 Melody’s husband, Jimmy and herself will be part of the lineup as well since this cause means so much to them! 🥰

LINEUP:
8-9pm: Jimmy Hagan
9-10pm: Rooster
10-11:15pm: Wiggles
11:15pm-12:30am: Miss Melodious

We accept donations at the door and provide QR codes for direct donations.
You can still donate before and after the event, regardless if you’re able to attend. Link in bio.

Thank you and hope to gain your support/see you at Wonderlove!!

As Spinal Flow Practitioners people come to us after trying everything — doctors, specialists, treatments — and still find themselves in pain. What’s often overlooked is the stress held in the spine. This stress can block the body’s natural healing energy from flowing freely. With the Spinal Flow Technique™, we gently locate and release these blockages. When the body’s healing pathways open, people often experience profound relief — sometimes after years of struggle.

Our mission is simple: to help people reconnect with their body’s innate ability to heal. Reach out for more info and to schedule a healing Spinal Flow session!

Happy Disability Pride Month!!

Disability Pride Month is held in July to align with the signing of the Americans with Disabilities Act on July 26, 1990. Disability Pride is a celebration of disability community, culture, and resilience, and our ongoing fight for civil rights and justice. The first official Pride event took place in 1990, and the first parade in 2004, though communities have been celebrating for much longer.

The Disability Pride flag was created by Anne Magill in 2019. The original version had saturated colors and a zigzag line, but it caused visual triggers for people when viewed online. With community input, Anne redesigned it. The new flag has muted colors and a straight horizontal line.

Everyone is included in Disability Pride Month! The color stripes represent different tyoes of disabilities:

Red - physical disabilities
Gold - neurodiversity
White - invisible disabilities and disabilities that haven’t yet been diagnosed
Blue - emotional and psychiatric disabilities, including mental illness, anxiety, and depression
Green - for sensory disabilities, including deafness, blindness, lack of smell, lack of taste, audio processing disorder, and all other sensory disabilities.

The faded black background represents mourning and rage for victims of ableist violence and abuse. The diagonal band cuts across the barriers that Disabled people experience in society and represents the creativity by which we move through the world.

Its so important to know our history and take pride in our communities. Whether you are disabled or not, we hope you’ll take some time this month to learn about disability culture, theory, and activism.

ID: the disability pride flag with text reading happy disability pride month! History and meaning of the disability pride flag. ~Repost from

No one should feel unseen, unloved or unsupported when dealing with chronic illness. Invisible illness, can be especially challenging for healthy people to understand. If you are struggling, know I’m someone who gets it and has walked this painful, winding path for 27 years. I wanted to give up many times when the pain would overwhelm me for months on end and I could barely get out of bed. I’m so glad I’m still here and that I kept fighting for my health though! Now I’m here if you need support fighting that battle yourself. No one should have to go through this alone or without the support they deserve. ❤️‍🩹

Surgery Update: Everything went really well! They didn’t end up operating on my sinuses so the recovery will be easier. The exploratory part of my sinuses caused some major pain and nose bleeding, so I’m relieved they didn’t do that procedure on top of the styloidectomy and jugular vein decompression in my neck. My surgeon said there was thinning in my sinuses but he didn’t see an actual CSF leak. Once he removed my styloid and decompressed my jugular vein, it started relieving the pressure in my head so Dr. Hepworth thinks that will help the thinning potentially repair itself. I was discharged the day of my surgery, unlike when I did the same surgery on my left side where I was in the hospital for 2 nights. The incision is so much smaller than my last surgery and doesn’t hurt nearly as bad. Plus no nerve damage this time! I still likely need to come back, down the road to repair the left side since my recent imaging shows my last surgeon didn’t remove the entire styloid and the part that’s left is still compressing my jugular vein. Also, a little known fact is they can grow back, which is why they try to remove the whole thing. There’s also nerve damage from that surgery that can potentially be repaired too. It’s still too early to tell the impact the surgery had on the headaches because there’s an adjustment period where more intracranial pressure is felt until I heal up more, but I’m feeling really positive that I’m going to get good results! For those interested (and not too grossed out by it!) there’s a pic of my styloid that was removed. It’s thicker/longer than it should be. I can’t believe that little bone caused me so much pain over the years! The diagram shows where the styloid process is located. With Vascular Eagles Syndrome it grows to be too big, calcifies and compresses your vascular system. Thanks to everyone who has checked in! I’ve felt so supported throughout this process, which I’m incredibly grateful for.

Not everyone gets it. Especially when you’re dealing with an invisible illness on a daily basis, like me, along with so many others. And ESPECIALLY when they mostly see you out on a good day or when using the aid of medication. Or when you’re masking the pain because you have so much practice at it.

It’s not always easy or understood by everyone, but little by little I’ve allowed myself to be more open about the chronic conditions I experience in hopes that it might help bring more awareness and understanding, as well as support to those who are also going through it.

For me this has allowed me to have more authentic connections with the people in my life. The people who work to understand are the ones that matter. They are your support system, because we aren’t meant to go through this alone.

This article is a must read as I know most of us are guilty of at least a couple of these eating habits. Would you change your relationship with food if it meant living a longer and healthier life?

http://www.care2.com/greenliving/four-food-habits-that-age-you.html?page=1

5 Food Habits That Age You Some poor eating habits do more than make you fat and tired - they age you from the inside out. Here are 5 food habits you want to kick for health and longevity.