Shay-Lala

Never a truer word written...

Touche 👈

💔 Let's get it right

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For the Parent of a Child with a Disability Experiencing Burnout -

It’s everything.
It’s all too much, really.
It’s the constant advocacy, lack of resources, social isolation.

It’s the guilt over what we cannot name.
It’s the doubt whether we are doing the right or wrong thing.
It’s the questions we don’t have answers to.
It’s the answers we do not know what to do with.

And when we get to this point, this point of feeling like we just cannot put one foot in front of the other, the point of not being able to make one more decision or have one more meeting over their education-

We scoop these kids up and hold them tight.
We breathe in their growth & we remember how far they have come.

We remember how far we have come, too.
And we know- no matter what it is the love that keeps us going.

It is the love that calls us to rest so we can keep going eventually.
It is the love that drives us.
It is the love that renews us.

We can be exhausted in our bones and in our minds.
& we can be grateful for a love this deep that it calls us to give and give and give some more.

May we rest knowing we can only do so much.
May we rest in this fierce kind of love.
Get my free ebook, “5 Spiritual Comforts for Parents of Kids with Disabilities”:
https://view.flodesk.com/pages/5df181b3154bd20026a1aeaa

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For those whom this applies to we see you 💛

You really do feel this letter in your chest 💔

An open letter to the parents of autistic children, from Hugh Van Cuylenburg. "The pain of being a parent of an autistic child is not the child, it's the world."

For the Mum's (and Dad's) who know 💜 this is for you credit to the original author read to the end loves...

❤️"She’s such a sweet girl."

"I promise she’s well-behaved when she’s with me."

"We had a great day. She definitely acts differently when you're not around."

Oh sweet child, little do they know.

I get you at your worst.

I get you when the sunny smile that brightened your face just moments ago shifts downward into the deepest scowl.

I get you when your lip starts to quiver and your eyes fill with tears.

I get you when you turn beet red and those splotchy red marks speckle your forehead and neck.

I get you when your fists ball tightly at your sides and your body goes stiff as a board.

I get you when your pint-sized frame hurls itself onto the floor.

I get you when you flail around on the ground, your high-pitched screams piercing the air, and the eardrums of anyone nearby.

I get you when I carry you out of grocery stores, out of restaurants, out of splash pads and playgrounds and parks, out of friends’ houses, out of the car, out of the backyard because it’s time to go inside for dinner.

I get you when I hold you tightly against my body, as you resist me so hard with yours.

I get you at your worst.

I know they stare. I know they talk. I know they judge the pale, sweaty woman wrestling her hysterical child away, hiding tears behind her oversized sunglasses.

But here’s the thing, child.

I get you at your worst, because you feel comfortable enough with me to show your true emotions.

I get you at your worst, because you trust me enough not to ever leave you.

I get you at your worst, because you don’t have to pretend with me.

I get you at your worst, because I am your
soft place to land. Your home. Your safe haven.

I get you at your worst, because you know without doubt or hesitation that I will love you no matter what you do.

I get you at your worst, because I am your mother.

Which means that when all is said and done, I don’t worry that you are an angel for other people, but not always for me.

Because when you wrap your arms around my neck and snuggle in my arms,

When in a sea of people you have eyes only for me,

When you turn around for a split second, just to make sure I’m there,

When your smile lights up the room when I walk through the door,

When I’m the first face you see in the morning and the last to kiss you goodnight,

I know.

I know I get you at your best, too.

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A great idea for you and your kids 🩷 Credit to the original poster.

Here I am at Kalamunda Night Markets come down and get a self care fix or some sensory toys for the little ones it's not too late for Christmas loads of stalls here 🩷

On tonight bring the kids 🩷