Angelina’s Army

UPDATE-
So first off I just want to think God ,I’m just praisingHim so much right now. I’m so thankful that He’s given me intuition and things to say for Angelina that would otherwise go so unnoticed.

Angelina‘s urine test came back clear there’s no UTI this time. Also I had mentioned about aspiration. I’ve been very concerned even back in July. I mentioned to her neurologist about how she is choking during dinner time now because that’s the only time of day that she’s eating through her mouth and drinking through her mouth
She has been on a thickener for her liquids for several months now
But she is really choking a lot more and she’s even coughing/choking on just her saliva during the day when she gets really excited and that.

So I thought to mention that I was concerned about aspiration and if they could listen to her lungs. They said her lungs sound really good but because I am concerned about aspiration, they’re gonna do a chest x-ray.
Sure enough she is aspirating.
She has what’s called aspiration pneumonitis. Basically her lungs and her chest are inflamed due to the aspiration. It is not pneumonia yet, but it can turn into it. She cannot eat or drink through her mouth until her next chest x-ray Thursday, and if it shows pneumonia, then they will order an antibiotic and she will see her pediatrician on Friday either way. Aspiration pneumonitis can and is cause of all her symptoms she is having.

I’m really extremely sad and heartbroken because seizures have stolen so much from this precious girl and it’s breaking my heart to see her losing more abilities.

Thank you all for praying and your concerns ,means more than you know.

Getting checked,
As her symptoms from the uti are back after being off the antibiotic for almost a week.

I really don’t like coming to the hospital, but once again, shes not able to tell me a thing and her dr recommended as well. Thankful the staff is amazing.

We pull out all the stops to make Outrace Epilepsy! a fun morning for everyone! On top of our biggest awareness walk (and run) of the year, you can also meet Elsa and Supergirl, get free swag, win medals, and stay at the zoo for free afterwards!

You can also get your face painted for free, complete a kids' scavenger hunt to win a prize, and learn about seizure first aid from our staff and their puppet friends!

Sign up or remind your friends this week, before registration increases on the day of the race, August 16: https://runsignup.com/outraceepilepsy

Remember, kids ages 5 & under get free admission to both our race and the zoo!

🎉 HUGE news for our community: the National Plan for Epilepsy Act (S. 494) just passed the U.S. Senate. Unanimously.

This comes less than two weeks after the Senate HELP Committee advanced the bill, and it puts us closer than we've ever been to a coordinated national strategy for epilepsy care, research, and support.

For the nearly 3.4 million Americans living with epilepsy, including our LGS families navigating one of the most complex and treatment-resistant forms, this matters. A national plan means better diagnosis pathways, more research investment, and real coordination across the systems families are so often left to piece together on their own.

But the work isn't done yet. The bill now heads to the House of Representatives before it can become law, and we'll be watching closely and continuing to advocate for its passage.

To all our LGS families: thank you. Every story shared, every moment spent raising awareness for this community, it all adds up, and this win reflects that.

Today, we all celebrate. 💜

Gastro appointment.
She may not be able to tell me with words, but I believe her expression says how she feels about yet another appointment

Woohoo!!
This is great!!
Thanks to everyone who has donated so far!!
You are making a huge
Impact on those living with epilepsy

There is still time
Time to donate and even join our team , August 16 th at the Cleveland zoo

We loved to have a huge
Group
Representing Angelina 💜

Thanks again and much love all!!

https://runsignup.com/Race/75450/Donate/5oNY1L7ab0oFfYxg

Angelina’s Army

We're overwhelmed by the support for Outrace Epilepsy this year! Out of all of the donations we have received, a combined $10,000 are thanks to just these SIX teams alone:

1. Luke's Troops: $2,625
2. Love for Lily, Lucy, and Luka: 2,283
3. Angelina's Army: $1,514
4. Team Avery: $1,375
5. Team Beverage Distributors: $1,280
6. Kilometers for Chris: $1,010

THANK YOU TEAMS! All of these donations allow us to keep educating the community and providing free services to adults and families struggling with epilepsy.

Join a team or donate here: https://runsignup.com/outraceepilepsy