Panacea Family Health

The NWPPN network is an amazing organization led by parents of children (and adults) affected by PANS/PANDAS - please share the post to increase awareness and raise funds to help low income families access services and educate the public. This condition is still not recognized or diagnosed properly.

Basically, some people develop notable and sometimes severe psychiatric disturbances as a result of infections. Their immune system becomes dysregulated; it is the neuroinflammatory process that is at the root of the psychiatric symptoms (neuroinflammation, like short circuiting the brain). Some of the patients end-up institutionalized or hospitalized - and the process can last for YEARS until someone diagnoses PANS/PANDAS correctly.

How many children (and adults) in the "system" have this and are undiagnosed? Who knows, but this is treatable and dramatically changes the lives of those affected.

Wednesday Walk 4 Education UPDATE! 📢

If you haven’t heard already 👂, October 9th is PANDAS/PANS AWARENESS DAY 💥 and we are WALKING AND FUNDRAISING FOR EDUCATION in 2024 🚶

We’re also raising funds to distribute as many books on PANDAS/PANS to our LOCAL SCHOOLS as we can 🏫

We are so THRILLED about the donations we’ve received to date and want to share our utmost gratitude to those who have already given 🙏

Please share and tell your community why this work matters to you 🎤

Cauliflower with ginger, garlic and cilantro.

1) Cut ginger and garlic in small pieces.
(Ginger is easy to peel by scraping it with a knife, cut dried out parts)
2) Cut cauliflower florets and chop cilantro 2/3 of a bunch)
3) Sauté garlic and ginger in olive oil till slightly toasted and remove with a slotted spoon or a spoon against the side of the pot
4) Add the cauliflower and sautéed medium heat, stir occasionally,
5) When a little browned, add 2 tablespoons of water (or less, depending on size of cauliflower) add salt and pepper or other spices, cover and cook at low heat, stirring occasionally.
6) When almost ready add cilantro and cook for another couple of minutes

Yes, we did it! Kuddos to the NWPPN - the coalition led by families of children who have struggled with this not so rare condition

We MADE THIS HAPPEN. 🎉

This Community.
With our PANDAS National Experts.
With letters and emails.
With family testimonies.
With the support of our sister PANDAS/PANS organizations.
With our legislators.
With laying the groundwork the last 3 years with policy makers.

Thanks to everyone who made this happen.
This is groundbreaking.
This is precedent.
This is progress.

And we won’t stop here 🛑
There is more work to do.

“We are pleased with the HERC determination on coverage for PANDAS/PANS children in Oregon,” said Sarah Lemley, executive director and co-founder of Northwest PANDAS/PANS Network, an advocacy group that helps parents file appeals and seek coverage. “We plan on continued efforts to ensure this coverage determination is enforced with all insurers in Oregon. Equitable access to treatment will help address health inequity in our state but not until all Oregon insurers are held accountable to do the same.”

Hearing is next week and we appreciate your support

WE NEED YOUR HELP! 📢

Upcoming Oregon Medicaid hearing on PANDAS/PANS treatment coverage is next week. 🗓

What we need you to do 🙋🏽‍♂️:
-Email your support of their NEW COVERAGE GUIDANCE OPTION #2 which only requires ONE subspecialist, allows for primary care to be inclusive of Naturopaths, supports telemedicine consults (extremely important for those in rural areas) and allows adolescents to use an adult subspecialist.

📧 Email them today at [email protected]

Our next post will have talking points for your email. Please help us make this progress in Oregon as we know other states are paying CLOSE ATTENTION to how this plays out here. ⚾️

How to stay healthy while traveling: leeks boiled and seasoned with lemon and olive, dolmas (grape leaves) arugula salad with walnut oil, calories from olives and of course, anthocyanins from red wine, super important.
Leeks are very easy to store and keep fresh.
Slice them 5 thick, boil and add them to salads or other dishes. Super easy and inexpensive. Enjoy them often

https://instagram.com/p/CbgJ7V4PBV0/

How to stay healthy while traveling: leeks boiled and seasoned with lemon and olive oil, dolmas (grape leaves) arugula salad with walnut oil, calories from olives and of course, anthocyanins from red wine, super important. Leeks are very easy to store and keep fresh. Slice them 5 thick, boil and add them to salads or other dishes. Super easy and inexpensive. Enjoy them often

I can’t copy the text, but basic recipe is on Instagram - I am on the road and this is a quick evening meal
https://www.instagram.com/p/Cbal4VYpRlv/?utm_medium=copy_link

I am on the road and most of the time what is difficult to find eating out is vegetables. So that s what I make at the B&B. Here I sautéed a large onion till slightly golden, added left over sausage and sautéed that a bit. Greens are a lot of mustard greens chopped small and added at the last time. You can eat the stalk of mustard greens. I travel with olive oil and a small cooler that can keep basic groceries, including greens…

Roasted cabbage

https://www.instagram.com/p/CbDogZUv0g9/?utm_medium=copy_link

Roasted cabbage, super easy and cooked while doing the laundry. Warm oven to approx 350. Shred cabbage in food processor (5mm thick more or less) and slice (sweet) onion same thickness. Add some olive oil to pan, distribute onion and cabbage, add salt & pepper to taste; I added 1/2 teaspoon of tarragon. Drizzle another tablespoon or two over the cabbage and mix. Roast in the oven until you can smell it (I think it was 15-20min) I am going to mix and bake again a few min while I get other stuff ready.

With the leftover dressing from the celeriac salad, I cobbled together another quick meal. Grated raw beet (it does not taste earthy in a salad but adds sweetness, super tasty and easy). Olives and avocado added the day and calories. Turned out to be tasty but it was definitely a quick fix for lunch between patients

With the leftover dressing from the celeriac salad, I cobbled together another quick meal. Grated raw beet (it does not taste earthy in a salad but adds sweetness, super tasty and easy). Olives and avocado added the day and calories. Turned out to be tasty but it was definitely a quick fix for lunch between patients

This is an easy favorite for fall and winter - celeriac salad, with the roots from celery. You can make a large batch and eat next day. Simply peel with potato peeler, grate with food processor and add a vinaigrette made with a little mayonnaise and mustard. I added a touch of truffle oil but that is optional.

This weekend: very French and seasonal. Endive salad with crushed walnuts and apples; vinaigrette with balsamic and mustard.
Onion soup - I use the recipe from the Moosewood cookbook (next post)

Tonight a quick throw things together:
A can of coconut milk, half jar left over of Indian Aghaar sauce (or other spicy sauce) and left over veggies I had in the fridge: 3 celery stacks, 2 carrots, 1 onion, bell pepper and two bags of bean sprouts (rinsed)
Warm the coconut milk, sauce and 1 quart to 1 pint water, get it real hot and add all the vegetables, bring to boil then decrease to low temp and cover to simmer until veggies are cooked.
Any combination of veggies or sauce will do. I had very little sauce so I added some leftover puréed tomatoes, grated 1 inch of ginger and 1 stick of cinnamon and salt to taste, squeezed a little lemon to adjust the taste at the end.
It is super fast and easy, and easy to make large batches.

I am a strong supporter of this organization and thought it would be right to share here their special program

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